fila4me
Well-Known Member
Just wanted to share....
I had treatment #100 today and we decided I should ring the bell every 100 treatments! As I will never be done with weekly treatments of Herceptin. My genetic study showed I carry the gene mutation for colorectal cancer and acinic cell carcinoma, which is the cancer I have which explains why it keeps coming back. Even while I was getting chemo and just finished proton therapy radiation. There are no FDA approved drugs and I do not qualify for clinical trials.
My tumors have all tested positive for HER2 receptor, which means
HER2-positive cancer is a cancer that tests positive for a protein called human epidermal growth factor receptor 2 (HER2), which promotes the growth of cancer cells.
It is not very common in salivary gland cancers (what I have), so we are learning as we go.
My team of 9 Dr's , all agree that I should keep on this regimen for life, as it seems to be keeping it from metastasizing again. For a normal patient treatment is usually a year and with minimum to no side effects. In the last 8 months I have started having extreme fatigue, severe joint and muscle pain, horrific nausea for 2-4 days after, cracking skin, edemea, peeling nails and sometime chronic diarrhea . It also is horrible on your heart, so I get echo cardiagram every 3 months and am pleased to say my heart had gotten stronger! ! I have cataracts now from the long term steroid use, bloating , chronic mastoiditis and chronic sinusitis from all the radiation and proton. On top of already having fibromyalgia, neuropathy in my hands and feet. Who would have thought!!??
But I am alive and kicking it's ass every chance I get!
These are from today taken during my 100th treatment! I am very puffy from all the steroids and fluid build up, honestly feel like a tick ready to pop!! Lol
Sent from my SM-S920L using Tapatalk
I had treatment #100 today and we decided I should ring the bell every 100 treatments! As I will never be done with weekly treatments of Herceptin. My genetic study showed I carry the gene mutation for colorectal cancer and acinic cell carcinoma, which is the cancer I have which explains why it keeps coming back. Even while I was getting chemo and just finished proton therapy radiation. There are no FDA approved drugs and I do not qualify for clinical trials.
My tumors have all tested positive for HER2 receptor, which means
HER2-positive cancer is a cancer that tests positive for a protein called human epidermal growth factor receptor 2 (HER2), which promotes the growth of cancer cells.
It is not very common in salivary gland cancers (what I have), so we are learning as we go.
My team of 9 Dr's , all agree that I should keep on this regimen for life, as it seems to be keeping it from metastasizing again. For a normal patient treatment is usually a year and with minimum to no side effects. In the last 8 months I have started having extreme fatigue, severe joint and muscle pain, horrific nausea for 2-4 days after, cracking skin, edemea, peeling nails and sometime chronic diarrhea . It also is horrible on your heart, so I get echo cardiagram every 3 months and am pleased to say my heart had gotten stronger! ! I have cataracts now from the long term steroid use, bloating , chronic mastoiditis and chronic sinusitis from all the radiation and proton. On top of already having fibromyalgia, neuropathy in my hands and feet. Who would have thought!!??
But I am alive and kicking it's ass every chance I get!
These are from today taken during my 100th treatment! I am very puffy from all the steroids and fluid build up, honestly feel like a tick ready to pop!! Lol
Sent from my SM-S920L using Tapatalk